I went to the Oncologist Thursday and he wants to run additional tests on the biopsy sample before he makes any decisions on which chemo drugs to use. This will take another couple of weeks. I know he wants to be sure he's using the best combination but couldn't he have ordered all this back when he first talked to my surgeon in November? We'd have it all by now. When I saw the surgeon Monday she had talked to the Oncologist and seemed fairly certain of what the treatment would be. Then he comes in like he hasn't made his mind up yet.
He also wants me to have blood tests run which requires another appointment at a separate diagnostic center because, get this, the HEMATOLOGY/ONCOLOGY center I was at apparently doesn't draw blood for testing. These people deal in blood diseases but they're not drawing the blood? Seriously? To me that's like going to the dentist but having to get your x-rays done elsewhere. The nurse was telling me I can go anywhere I want to get this done (except there apparently) but I told her I don't know of any "places" to get blood drawn because other dr. offices that wanted my blood were always able to do it right then and there.
So anyway, the nurse gave me the name of a "place" and told me to have the blood drawn about a week before my next appt. (on the 29th) because some of the tests take several days for results and we want to make sure they're all in. What she doesn't know is that I checked the calendar and realized the week before my appt includes CHRISTMAS so I'm having mine done 2 WEEKS before the appt... HA! And then I'm calling a week before the appt to make sure they have everything. I'll be danged if I'm paying another office co-pay and finding someone to watch my kids yet again just so I can sit there and have a dr. tell me he doesn't have all my tests results back. When I go to an appt, I want ANSWERS and a plan of action. If you don't have that for me, call me when you do and I'll see you then!
I totally lost it after that appt Thursday. I'm a planner. I like to know all the steps involved and have it all scheduled out nice and neat. I don't like someone coming in from left field and messing up the plan. I'm not a spontaneous, fly-by-the-seat-of-my-pants kind of gal.
But I can at least now look forward to being able to enjoy my holidays without feeling sick or having my hair fall out. And in spite of all my griping, I am very thankful for that.
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3 comments:
I'm so sorry for your predicament. Call me if you need ANYTHING. As you already know, I'm not working so if you need me to babysit (I can't guarantee that I'll be good at diapers though), grocery shop, anything so you can concentrate on doing what you need to do and I'll do make your life a bit more tolerable.
Maybe it's Christmas or simply my nature to extend kindness to those who need it, just know that I'm always open.
-John
I totally get the being a planner thing and know that when it comes to doctors we would prefer to have to all planned out. As the Moms, we have all these OTHER things going on in the background (like childcare, school pickup, house stuff) so it is NEVER as easy as just scheduling the appointment and seeing the doctors.
I've been trying to get something medical taken care of and had hoped it would be done before the end of the year. Yesterday I found out it wouldn't be until after the new year and I CRIED on the way home because it just messed up planning, throwing so many more balls in the air. (Nothing serious, I promise.)
How frustrating!! I would have not paid the co-pay for that visit!! Praying for you, the family, and THE PLAN! Praying that you can enjoy the holiday and not stress about the plan!!
Miss you guys!
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